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Finding ways to enjoy life after work

November 12, 2013


I recently had to quit my part-time job because of my MS. I was a football referee for 25 years and now…I'm not sure what I'm supposed to do. I feel sad and frustrated when I think about how my MS forced me to give up something I love. Plus, I'm not sure what to say to my two sons. I want to teach them about hard work and set a good example, but I don't see how I can when I'm not even working. What can I do?

Missing My Work Routine

Nurse Karen replies:

Giving up jobs or activities that mean a lot to you can be a very difficult process when you're living with MS. When things happen that are outside of your control it can make you feel helpless, and it's perfectly normal for it to make you feel down or angry too. I would recommend that you first let your doctor know how you're feeling and that you've had to stop working, as it's important to keep him or her in the loop.

I have a favorite phrase that I use sometimes, and that's “look for the rainbow.” I say that because even when the clouds of life are dark and gloomy, there may be a rainbow of opportunity that can come from the experience.

In your case, your relationship with your sons can be a rainbow. Just because you aren't working as a referee doesn't mean you can't share your expertise and work ethic. Maybe you can sign them up for a junior football league or another sport and then help coach their team part-time. Or you could take them to a local football game and share all the strategies and interesting information you've learned over the years.

Adapting to the changes that come your way is a part of life as much as it's a part of MS. But sometimes if you shift your perspective just a little bit, you can find good things.

— Nurse Karen, MS One to One® Nurse

Nurse Karen ; Parenthood ; Independence ; Work


MS One to One® Nurse, Karen

Nurse Karen
Helping since 2013
Posts: 9

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