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EmilyShe has been compensated by Sanofi Genzyme.

Four people living with MS. Four inspirational stories to tell.

Emily: Once I Get an Idea, I Fight for It

When it comes to giving back to the MS community, Emily isn’t just talking the talk. She founded her own self-help group for those under 30 living with MS—and is showing all of us the power of a great support network.

Read Emily’s full story

I’m very tenacious. I don’t give up once I get an idea – I fight for it. What led up to my relapsing MS diagnosis was I was on the computer and I looked at the screen as I was typing, and there was just rows upon rows of A’s and I didn’t know I was even touching the A key.

For me, relapsing MS is not some battle you’re trying to fight – it’s something you kind of come to grips with. Instead of fitting your life around it, you fit it into your life.

Having relapsing MS has really allowed me to be more empathetic to what people are feeling. When you first get the diagnosis, that’s all you think about. I mean that’s all that’s on your mind. So, I decided to start my own self-help group for people 30 and under called “Hope for the Future,” so that we could all get together and kind of rally as a team, to try to provide the support that everybody needed or was searching for.

I have a really great support network, especially with my healthcare team. They’ve walked with me and I’ve gotten to walk with them for 11 years with this relapsing MS diagnosis, and so they’ve seen me grow up and they’ve seen the transitions I’ve made. They’re the people you go in and you know them so well that you say “I love you” at the end of the doctor’s appointment and give each other hugs.

I’m Emily. I have a diagnosis of relapsing MS, but I am not relapsing MS and Emily.

I learned that life can continue as normal with adaptations, that you don’t ultimately have to put off your dreams – you can continue with them or they might evolve into something different that’s going to be better for you. There’s always going to be something wonderful that comes out of it. There’s always going to be hope and something to look forward to.

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